National PKU Alliance (NPKUA)
P.O. Box 3235, Woburn, Massachusetts 01888-2135 USA
PKU, or phenylketonuria (pronounced fen-il-Key-to-New-ree-uh) is a genetic disorder where a deficient enzyme prevents the body from metabolizing an essential amino acid, called Phenylalanine, or Phe. When left untreated, PKU patients are at risk for severe neurological complications. The NPKUA was created to bring together the grass roots efforts of the 16 active local PKU organizations, 100 metabolic clinics, national and worldwide research institutions, low-Phe food and formula manufacturers and pharmaceutical companies as one national voice dedicated to raising PKU awareness and driving advocacy and education, while ultimately seeking a cure for PKU.
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